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CSL Behring is committed to helping to improving the quality of life for patients with rare diseases, including:
Where an essential protein required for a blood clot to form is either missing, significantly reduced or dysfunctional.
A severe form of anaemia caused when the blood group of the mother and baby are not compatible.
A problem with the blood where there is not enough of one of the clotting factors needed for clots to form.
A rare genetic condition that can cause considerable swelling in various body tissues.
Where one or more components of the immune system are either missing or not working properly.
Diseases of the central and peripheral nervous system, e.g. the brain, spinal cord, crania nerves, peripheral nerves, nerve roots, automatic nervous system, neuromuscular junction and muscles.
Anticoagulants are medicines that thin the blood and are used to reduce the risk of blood clots. When a person on anticoagulant therapy experiences a bleeding episode, it may be necessary to reverse the effects of the anticoagulant to stop the bleeding.
A problem with one of the clotting factors in the blood; this particular clotting factor is known as von Willebrand factor.
Why Sit It Out is an online resource to support children with the bleeding disorder haemophilia to stay physically active and try new activities and sports. Youngsters can search for an activity that's just right for them and find contacts to help them get started.
Why Sit It OutIf you would like to find out more information on any of the conditions or topics covered on this site, please click on the links below:
European Haemophilia Consortium
www.ehc.eu
HAE UK
www.haeuk.org
HAEi
www.haei.org
Haemophilia Society
www.haemophilia.org.uk
International Patient Organisation for Primary Immunodeficiencies
www.ipopi.org
Immunodeficiency UK
www.immunodeficiencyuk.org
UK PIPs
www.ukpips.org.uk
World Federation of Haemophilia
www.wfh.org
GBR-CRP-0190 September 2021