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Focus on Rare Diseases

CSL Behring is committed to helping improve the quality of life for people with rare and serious diseases worldwide. This commitment is reflected in our support of programmes and activities for patients with rare plasma-protein related diseases, including bleeding disorders and primary immune deficiencies.

We collaborate with patient advocacy platforms, both disease-specific and umbrella organisations, to promote quality medical care and services and to improve and expand educational and outreach efforts. Through these partnerships, we strive to raise public awareness and to enhance appropriate public policies for rare diseases.

We support specialist patient organisations which provide a united voice for the rare disease community by capturing the experiences of patients and families. They work with supporters to raise the profile of rare diseases across the UK and seeks to bring about lasting change offering better health and quality of life for individuals and families affected by rare diseases.

These patient organisations include: The UK Haemophilia Society, Haemophilia Scotland and the Irish Haemophilia Society, HAEUK, IDUK, UKPIPS, Inflammatory Neuropathies UK.

GBR-CRP-0666 February 2026