Relationships with Patient Organisations

CSL Behring provides financial support to a number of Patient Organisations. Donations are made in accordance with the requirements of Clause 27 of the ABPI Code of Practice for the Pharmaceutical Industry.

From 1 January - 30 June 2014 grants were made to the Patient Organisations listed below.

Patient Organisation	Purpose of Grant	Amount
Alpha-1 UK Support Group	Support for awareness and education campaign	£60,000
HAE UK	Corporate donation and support for speaker expenses	£3,740
Rare Disease UK	Corporate donation and support for a press cutting service	£8,858
The Haemophilia Society	Corporate donation and Support for a radio campaign	£43,000
UKPIN	Corporate donation	£10,000

From 1 July – 31 December 2014 grants were made to the Patient Organisations listed below.

Patient Organisation	Purpose of Grant	Amount
HAE UK	Corporate donation	£15,000
Immune Deficiency Patient Group	Support for patient information evening	£900
Rare Disease UK	Corporate donation	£8,400
The Haemophilia Society	Corporate donation	£25,000
UKPIPS	Corporate donation	£15,000

From 1 January 2015 – 31 December 2015 grants were made to the Patient Organisations listed below.

Patient Organisation	Purpose of Grant	Amount
Alpha-1 UK Support Group	Corporate Donation	£60,000
HAE UK	Corporate Donation	£35,225
UKPIPS	Donation towards patient support	£15,000
Irish Haemophilia Society Ltd	Corporate Donation	£4,284.54
PID UK	Corporate Donation	£15,000
Immune Deficiency Patient Group of Wales	Annual Patient's Evening Support	£500

From 1 January 2016 – 31 December 2016 grants were made to Patient Organisations listed below.

Patient Organisation	Purpose of Grant	Amount
UK PIPS	Corporate Donation	£23,000
UK PIN	Corporate Donation	£15,000
The Haemophilia Society	Corporate Donation	£60,200
PID UK	Corporate Donation	£32,420
Immune Deficiency Patient Group	Patient Group Meeting Support	£1,800
HAE UK	Corporate Donation	£35,100
Alpha-1 UK Support Group	Patient Information Day Support	£1,200
Rare Disease UK	Corporate Donation	£10,000
Irish Haemophilia Society	Corporate Donation	£4,554.72

From 1 January 2017 – 31 December 2017 grants were made to Patient Organisations listed below.

Patient Organisation	Month	Purpose of Grant	Amount
UKPIN	January	Corporate Donation	£36,000
Rare Disease UK	January	Corporate Donation	£10,000
Irish Haemophilia Society	February	Corporate Donation	£6,396.75
XLP Research Trust	April	Corporate Donation	£8,000
Haemophilia Wales	May	Corporate Donation	£5,000
The Haemophilia Society	June	Corporate Donation	£35,000
HAE UK	June	Corporate Donation	£35,000
UKPIN	July	Corporate Donation	£36,000
Haemophilia Scotland	August	Corporate Donation	£3,500
UKPIPS	August	Corporate Donation	£20,000
Trauma Care Management Ltd	October	Corporate Donation	£300.00

Last updated: 25th July 2018

UK/CORP/18-0024

Relationships with Patient Organisations

Corporate

CSL Behring Worldwide