Relationships with Patient Organisations

CSL Behring provides financial support to a number of Patient Organisations. Donations are made in accordance with the requirements of Clause 27 of the ABPI Code of Practice for the Pharmaceutical Industry.

From 1 January - 30 June 2014 grants were made to the Patient Organisations listed below.

Patient Organisation

Purpose of Grant

Amount

Alpha-1 UK Support Group

Support for awareness and education campaign

£60,000

HAE UK

Corporate donation and support for speaker expenses

£3,740

Rare Disease UK

Corporate donation and support for a press cutting service

£8,858

The Haemophilia Society

Corporate donation and Support for a radio campaign

£43,000

UKPIN

Corporate donation

£10,000

 

From 1 July – 31 December 2014 grants were made to the Patient Organisations listed below.

Patient Organisation

Purpose of Grant

Amount

HAE UK

Corporate donation

£15,000

Immune Deficiency Patient Group

Support for patient information evening

£900

Rare Disease UK

Corporate donation

£8,400

The Haemophilia Society

Corporate donation

£25,000

UKPIPS

Corporate donation

£15,000

 

From 1 January 2015 – 31 December 2015 grants were made to the Patient Organisations listed below.

Patient Organisation

Purpose of Grant

Amount

Alpha-1 UK Support Group

Corporate Donation

£60,000

HAE UK

Corporate Donation

£35,225

UKPIPS

Donation towards patient support

£15,000

Irish Haemophilia Society Ltd

Corporate Donation

£4,284.54

PID UK

Corporate Donation

£15,000

Immune Deficiency Patient Group of Wales

Annual Patient's Evening Support

£500

 

From 1 January 2016 – 31 December 2016 grants were made to Patient Organisations listed below.

Patient Organisation

Purpose of Grant

Amount

UK PIPS

Corporate Donation

£23,000

UK PIN

Corporate Donation

£15,000

The Haemophilia Society

Corporate Donation

£60,200

PID UK

Corporate Donation

£32,420

Immune Deficiency Patient Group

Patient Group Meeting Support

£1,800

HAE UK

Corporate Donation

£35,100

Alpha-1 UK Support Group

Patient Information Day Support

£1,200

Rare Disease UK

Corporate Donation

£10,000

Irish Haemophilia Society

Corporate Donation

£4,554.72

 

From 1 January 2017 – 31 December 2017 grants were made to Patient Organisations listed below.

Patient Organisation

Month

Purpose of Grant

Amount

UKPIN

January

Corporate Donation

£36,000

Rare Disease UK

January

Corporate Donation

£10,000

Irish Haemophilia Society

February

Corporate Donation

£6,396.75

XLP Research Trust

April

Corporate Donation

£8,000

Haemophilia Wales

May

Corporate Donation

£5,000

The Haemophilia Society

June

Corporate Donation

£35,000

HAE UK

June

Corporate Donation

£35,000

UKPIN

July

Corporate Donation

£36,000

Haemophilia Scotland

August

Corporate Donation

£3,500

UKPIPS

August

Corporate Donation

£20,000

Trauma Care Management Ltd

October

Corporate Donation

£300.00

 

Last updated: 25th July 2018

UK/CORP/18-0024